{"id":20769,"date":"2020-12-22T15:42:05","date_gmt":"2020-12-22T18:42:05","guid":{"rendered":"http:\/\/www.institutosantosdumont.org.br\/?p=20769"},"modified":"2021-01-06T09:30:45","modified_gmt":"2021-01-06T12:30:45","slug":"confie-nos-seus-filhos-eles-sao-capazes-sao-criancas-que-podem-ganhar-o-mundo-diz-mulher-que-nasceu-com-espinha-bifida-e-medicos-achavam-que-nao-iria-sobreviver","status":"publish","type":"post","link":"https:\/\/institutosantosdumont.org.br\/en\/confie-nos-seus-filhos-eles-sao-capazes-sao-criancas-que-podem-ganhar-o-mundo-diz-mulher-que-nasceu-com-espinha-bifida-e-medicos-achavam-que-nao-iria-sobreviver\/","title":{"rendered":"\u201cTrust your children, they are capable. These are children who can win the world\u201d, says woman who was born with spina bifida and doctors thought she would not survive"},"content":{"rendered":"
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t
Bruna Filizzola, on screen, spoke about the future for families of children and adolescents with spinal cord injuries<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Renata Moura<\/strong> It is Kamila Tuenia<\/strong><\/span><\/p>

reporters<\/p>

Thirty-eight years after she was born, after doctors said \u201cshe won't survive\u201d and announced to her family \u201close hope\u201d, Bruna Filizzola looks into the camera and pleads with dozens of men and women: \u201cTrust your children, they are capable. These are children who can conquer the world.\u201d\u00a0<\/span><\/p>

The video lasts approximately 10 minutes and is shown in an auditorium in Anita Garibaldi Health Education and Research Center, from the Santos Dumont Institute (ISD)<\/a>, in Maca\u00edba (RN). The spectators are mothers and fathers of children and adolescents with different types of spinal cord injuries, treated at the Center.<\/span><\/p>

The adults applaud the testimony and embark on a reflection on the future. Meanwhile, the children watch another recording in the next room and say \u201cwow!\u201d when they see scenes in which they read, write, show drawings, surf, play ball, bake cake, play the violin, ride a bike and pose for a photo, smiling.\u00a0\u00a0<\/span><\/p>

\"\"<\/a>
Children and adolescents attended at Anita were encouraged to talk about potential<\/figcaption><\/figure>

Like Bruna, some of them were born with myelomeningocele, the most serious type of spina bifida \u2013 a malformation of the nervous system that affects the spine and can <\/span>result in paralysis of the legs and compromise bladder and bowel function.<\/span><\/p>

Brazil has already been named by the World Health Organization (WHO)<\/a> as the fourth country in prevalence of this malformation, behind Mexico, Venezuela and Bulgaria.\u00a0<\/span><\/p>

P<\/span>Prognoses of reduced life expectancy were not rare. \u201cBut this reality changed with the advancement of treatments\u201d, explains Camila Sim\u00e3o, physical rehabilitation coordinator, physiotherapist and multidisciplinary preceptor at Anita.<\/span><\/p>

U<\/span>An average of 50 children and adolescents per month are treated at the Center's Children's Spinal Cord Injury clinic, one of the nine it houses. Around 90% of the clinic's patients, according to Camila, have some type of spina bifida.\u00a0<\/span><\/p>

"A<\/span>Despite not having a cure, there are multidisciplinary treatments, stimuli, therapies and resources suitable for gains in functionality, quality of life and greater social inclusion\u201d, observes the physiotherapist.\u00a0<\/span><\/p>

Family support, Bruna guarantees, is also fundamental in the process.<\/span><\/p>

\u201cMy persistence and that of my parents have always been great. There are moments when we feel sad, when we let ourselves get down, when we don't trust. But when we get that strength from within and say 'everything will be fine'...that made my parents believe. It was always faith, positivity, hope\u201d, she said in the video she recorded to tell her own story to mothers and fathers of children and teenagers cared for at Anita.<\/span><\/p>

Myelomeningocele<\/b><\/p>

Myelomeningocele is a congenital malformation, that is, it is already visible at the birth of the baby.<\/span><\/p>

The backbone of a child with this condition does not form as it should during pregnancy. She<\/span> born with an opening <\/span>in the bones of the spine and through this opening comes a kind of bag filled with fluid, meninges and marrow or nerve roots \u2013 exposed on the back.\u00a0<\/span><\/p>

Surgery to close this opening is recommended within the first 24 hours after birth. \u201c<\/span>When I went into surgery, my mother looked at me and was sure that I was going to live, even though the doctors didn't believe it\u201d, says Bruna. \u201cFamily motivation, persistence, physiotherapy and sports\u201d were keys that, she says, allowed her to reach the future.\u00a0<\/span><\/p>

\u201cI grew up, studied in normal schools, played sports, graduated in law, got married. My parents always pushed me forward, gave me strength\u201d, she adds while hugging her 7-year-old daughter who she calls \u201cGod\u2019s blessing\u201d.\u00a0<\/span><\/p>

\u201cDo your children need care? need. But never throw them down. Always give a lot of self-confidence.\u201d\u00a0<\/span><\/p>

\u00a0<\/div>
\u00a0<\/div>
\u00a0<\/div><\/div><\/div>
\u00a0<\/div>
\u00a0<\/div>
View this photo on Instagram<\/div><\/div>
\u00a0<\/div>
\u00a0<\/div>
\u00a0<\/div>
\u00a0<\/div><\/div>
\u00a0<\/div>
\u00a0<\/div><\/div>
\u00a0<\/div>
\u00a0<\/div>
\u00a0<\/div><\/div><\/div>
\u00a0<\/div>
\u00a0<\/div><\/div>

A post shared by Instituto Santos Dumont (@isdnarede)<\/a><\/p><\/div><\/blockquote>