{"id":36603,"date":"2026-10-29T09:08:00","date_gmt":"2026-10-29T12:08:00","guid":{"rendered":"https:\/\/institutosantosdumont.org.br\/?p=36603"},"modified":"2026-10-29T09:08:16","modified_gmt":"2026-10-29T12:08:16","slug":"isd-abre-inscricoes-para-o-forum-de-atualizacao-no-cuidado-a-pessoa-com-espinha-bifida","status":"publish","type":"post","link":"https:\/\/institutosantosdumont.org.br\/en\/isd-abre-inscricoes-para-o-forum-de-atualizacao-no-cuidado-a-pessoa-com-espinha-bifida\/","title":{"rendered":"ISD opens registration for the Update Forum on Care for People with Spina Bifida."},"content":{"rendered":"<p><span style=\"font-weight: 400;\">The Santos Dumont Institute (ISD) is with <\/span><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSfe3JoXnHI9nOEZH6qlRtQ_A7hmdezeqZQ0hnjDDHYUSU0zMA\/formResponse\" target=\"_blank\" rel=\"noopener noreferrer nofollow\"><b>registrations open<\/b><\/a><span style=\"font-weight: 400;\"> for the Update Forum on Care for People with Spina Bifida, aimed at both internal and external audiences of the institution. The event will take place on November 11th, starting at 8:30 am, at the Edmond and Lily Safra International Institute of Neuroscience (IIN-ELS), in Maca\u00edba.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">With the goal of disseminating updates and strengthening the care pathway for this condition, of which myelomeningocele is the most common type, the meeting will bring together specialized professionals to discuss the most current and scientifically sound approaches in multidisciplinary care.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The program was entirely designed to encompass all life stages, from gestation to adulthood, highlighting biopsychosocial and multidisciplinary care with a focus on the participation and social inclusion of people with spina bifida and their families.<\/span><\/p>\n<p><b>Target audience and registration<\/b><\/p>\n<p><span style=\"font-weight: 400;\">The event is aimed at healthcare professionals, students, as well as people with spina bifida and their families.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Registration is free and must be done by filling out the form. <\/span><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSfe3JoXnHI9nOEZH6qlRtQ_A7hmdezeqZQ0hnjDDHYUSU0zMA\/formResponse\" target=\"_blank\" rel=\"noopener noreferrer nofollow\"><b>online registration form<\/b><\/a><span style=\"font-weight: 400;\">It is worth noting that there is a limit of 80 places reserved for the general public.<\/span><\/p>\n<p><b>What is spina bifida?<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Spina bifida is a congenital malformation of the neural tube that primarily affects the spine and central nervous system. It is characterized by the failure of the vertebrae to fuse properly during fetal development, resulting in an opening in the spinal column.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Spina bifida is usually diagnosed prenatally through routine ultrasounds. In some cases, the condition is identified after birth. Treatment may include surgery to repair the spinal defect typical of spina bifida. The condition requires lifelong follow-up, even after surgery.<\/span><\/p>\n<p><b>Schedule:<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">8:30 AM to 9:00 AM \u2013 Opening<\/span> <span style=\"font-weight: 400;\">official, with theme<\/span><i><span style=\"font-weight: 400;\"> &quot;Spina bifida in 2026: why we need to think about a lifelong care pathway?&quot; <\/span><\/i><span style=\"font-weight: 400;\">(Camila Rocha Sim\u00e3o)<\/span><\/li>\n<\/ul>\n<p><strong>Block 1 \u2014 From Prenatal Diagnosis to Birth (Round Table)<\/strong><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">9:00 AM to 9:20 AM \u2013 Prenatal diagnosis of spina bifida: Paths and possibilities (Carolina Resende and Camila Rocha Sim\u00e3o)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">9:20 AM to 9:40 AM \u2013 Fetal surgery for myelomeningocele: indications, results, and current limitations (Igor Faquini)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">9:40 AM to 10:00 AM \u2013 Welcoming pregnant mothers of children with spinal dysraphism. Have we evolved in the last twenty years? (Neurinho Association and Camila Rocha Sim\u00e3o)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">10:00 AM to 10:30 AM \u2013 New Classification: Understanding the different types of spina bifida and their importance (\u00c2ngelo Raimundo da Silva Neto)<\/span><\/li>\n<\/ul>\n<p><strong>Block 2 \u2014 The Child with Spina Bifida: Preventing Complications<\/strong><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">10:30 AM to 11:00 AM \u2013 Neurogenic bladder: urological assessment and rehabilitation (Silvia Oliveira Ribeiro Lira)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">11:00 AM to 11:30 AM \u2013 Orthopedics in spina bifida: what to treat and what not to treat? (Kalyana Eduardo)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">11:30 AM to 12:00 PM \u2013 Tethered spinal cord in a patient with spina bifida (\u00c2ngelo Raimundo da Silva Neto)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">12:00 to 13:30 \u2013 Lunch<\/span><\/li>\n<\/ul>\n<p><strong>Block 3 \u2014 More Than Just Walking: Functionality and Independence<\/strong><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">1:30 PM to 2:00 PM \u2013 Physiotherapy throughout life: mobility, gait, transfers, and deformity prevention (Clea Emanuela Barreto de Medeiros)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">2:00 PM to 2:30 PM \u2013 Orthotics, wheelchairs, and assistive technologies: choosing to gain independence (Maria Clara Lima da Cruz and Camila Rocha Sim\u00e3o)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">2:30 PM to 3:00 PM \u2013 Paralympic Sport: Sport as a tool for health, autonomy, and inclusion (Candze Maria da Silva)<\/span><\/li>\n<\/ul>\n<p><strong>Block 4 \u2014 Cognition, Family, and Social Participation<\/strong><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">3:00 PM to 3:30 PM \u2013 Beyond motor deficits: neuropsychological profile, executive functions, learning and language in spina bifida (Luana Metta and Nyara Aguiar)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">3:30 PM to 4:00 PM \u2013 Family, school, rights and social vulnerability: the role of Social Work (Anna Waleska)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">4:00 PM to 4:30 PM \u2013 Adolescence, sexuality, self-care, and building autonomy (Erica Juliana and Thays Br\u00edgido)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">4:30 PM to 5:00 PM \u2013 Transition to adulthood: why do these users get lost along the way? (Transition Team, Pediatrics, Adult Medicine)<\/span><\/li>\n<\/ul>\n<p><b>Service:<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Date: November 11, 2026<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Location: Edmond and Lily Safra International Institute of Neuroscience (IIN-ELS), a unit of the Santos Dumont Institute.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Course duration: 8 hours<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Hours: 8:30 AM to 12:00 PM, 1:30 PM to 5:00 PM<\/span><\/p>\n<p><b>About ISD<\/b><\/p>\n<p><span style=\"font-weight: 400;\">The Santos Dumont Institute (ISD) is a Social Organization of the Federal Executive Branch, supervised by the Ministry of Education, with the intervention of the Ministries of Sport and Health. It encompasses the Edmond and Lily Safra International Institute of Neuroscience and the Anita Garibaldi Center for Education and Research in Health, both located in Maca\u00edba. The ISD&#039;s mission is to promote education for life, forming citizens through integrated teaching, research, and outreach activities, as well as contributing to a more just and humane transformation of Brazilian social reality.<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>O Instituto Santos Dumont (ISD) est\u00e1 com inscri\u00e7\u00f5es abertas para o F\u00f3rum de Atualiza\u00e7\u00e3o no Cuidado \u00e0 Pessoa com Espinha B\u00edfida, voltado tanto para o p\u00fablico interno quanto externo da institui\u00e7\u00e3o. O evento ocorre no dia 11 de novembro, a partir das 8h30, no Instituto Internacional de Neuroci\u00eancias Edmond e Lily Safra (IIN-ELS), em Maca\u00edba. [&hellip;]<\/p>","protected":false},"author":18,"featured_media":33932,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1,13,259,28],"tags":[],"class_list":["post-36603","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-destaque_noticia","category-educacao-cientifica","category-educacao-saude","category-sem-categoria-en"],"acf":[],"_links":{"self":[{"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/posts\/36603","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/comments?post=36603"}],"version-history":[{"count":1,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/posts\/36603\/revisions"}],"predecessor-version":[{"id":36604,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/posts\/36603\/revisions\/36604"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/media\/33932"}],"wp:attachment":[{"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/media?parent=36603"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/categories?post=36603"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/institutosantosdumont.org.br\/en\/wp-json\/wp\/v2\/tags?post=36603"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}