03/03/2016
Text and photos: Ariane Mondo – Ascom ISD
On February 17, representatives of Association of Children with Myelomeningocele, Hydrocephalus and Cerebral Palsy of RN, affectionately called Neurinho, visited two units of the Santos Dumont Institute (ISD), located in Macaíba (RN).
The first stop was at Anita Garibaldi Health Education and Research Center (CEPS), where visitors were welcomed by the multidisciplinary team in a discussion group to exchange information and experiences between the two institutions. Representatives from Neurinho spoke about the work developed by the organization since 2004 and commented on the support actions for families in the state who have cases of neurological pathologies. The Association currently serves around 200 children and their families.
The doctor Reginaldo Freitas Junior, director of teaching and research at ISD and also director of CEPS, presented the mission, strategic objectives and work developed by the Santos Dumont Institute, highlighting the potential possibilities for interaction between the entities, in the various areas of activity of ISD.
At the second stop of the visit, representatives of the association were received by researchers from Edmond and Lily Safra International Institute of Neuroscience (IIN-ELS), where Edgard Morya, research coordinator, presented the projects under development, spoke about the scientific advances already observed and the horizon of possibilities for the treatment of neurological diseases.
Edmilson Firmino da Silva, president of Neurinho, stated that there had long been a desire to strengthen relations with the ISD for possible partnerships. He said that the Association has many demands for the support it intends to offer its children. “This monitoring by the Institute, providing information so that we can go further, seeking the quality of life of children and adults, is of utmost importance importance to us,” said Edmilson.
Reginaldo saw the possibility of several fronts of interaction between the association and the areas of activity of the Santos Dumont Institute: “Neurinho’s demands are multiple, both from the point of view of prenatal, pediatric and child care for children with neurogenic bladder, as well as guidance on scientific information. They brought up, very clearly, the need for scientific information in accessible language and I think this is very much in line with what we value in the ISD’s proposed action. One thing that surprised me about the visit of the
The Association was that their demands for partnerships with us go far beyond issues related to assistance and health care for children. They also raise very strong issues related to health education, the exercise of citizenship, inclusion and public policies aimed at people with special needs. There is a lot to be done!”, said the doctor. At the end of the visit, it was agreed that the Neurinho Association will present its specific demands to the ISD, electing priorities for 2016, so that the construction of a joint work plan for cooperation between the two entities can be evaluated.
More about CEPS HERE; About IIN-ELS HERE; and about the Neurinho Association HERE
